MAASTRICHT, 15 SEPTEMBER 2005
Attendees at the 9th World Congress on Endometriosis heard more about the challenge, which endometriosis presents for the millions of women worldwide, who live with this chronic disease.
The results of a global survey, completed by 7,025 women with endometriosis [1], were announced today by Lone Hummelshøj, co-founder of the Danish Endometriosis Society, as part of a workshop on pain and quality of life.
The survey, which was commissioned by the UK Endometriosis All Party Parliamentary Group, clearly demonstrated that much more is required to deal with the effects of endometriosis, which can wreck relationships, destroys careers, contribute to infertility, and can have an untold impact on quality of life.
The average diagnostic time from when women first presented to their GP/primary physician with symptoms was a staggering eight years.
Furthermore, the worrying lack of awareness of endometriosis leads to an additional three year delay before women with symptoms seek help in the first place, resulting in an overall diagnostic delay of 11 years - during which almost 50% of women had to see five doctors or more in order to obtain a diagnosis.
Less than 50% felt that their GP took them seriously when they first presented with symptoms.
65% were told they had another condition prior to a correct diagnosis.
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